Radbruch, Lukas and De Lima, Liliana and Knaul, Felicia and Wenk, Roberto and Ali, Zipporah and Bhatnaghar, Sushma and Blanchard, Charmaine and Bruera, Eduardo and Buitrago, Rosa and Burla, Claudia and Callaway, Mary and Cege Munyoro, Esther and Centeno, Carlos and Cleary, Jim and Connor, Stephen and Davaasuren, Odontuya and Downing, Julia and Foley, Kathleen and Goh, Cynthia and Gomez-Garcia, Wendy and Harding, Richard and Khan, Quach T. and Larkin, Phillippe and Leng, Mhoira and Luyirika, Emmanuel and Marston, Joan and Moine, Sebastien and Osman, Hibah and Pettus, Katherine and Puchalski, Christina and Rajagopal, M.R. and Spence, Dingle and Spruijt, Odette and Venkateswaran, Chitra and Wee, Bee and Woodruff, Roger and Yong, Jinsun and Pastrana, Tania (2020) Redefining Palliative CaredA New Consensus-Based Definition. Journal of Pain and Symptom Management, 60 (4). pp. 754-764.
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Abstract
Context. The International Association for Hospice and Palliative Care developed a consensus-based definition of palliative care (PC) that focuses on the relief of serious health-related suffering, a concept put forward by the Lancet Commission Global Access to Palliative Care and Pain Relief. Objective. The main objective of this article is to present the research behind the new definition. Methods. The three-phased consensus process involved health care workers from countries in all income levels. In Phase 1, 38 PC experts evaluated the components of the World Health Organization definition and suggested new/revised ones. In Phase 2, 412 International Association for Hospice and Palliative Care members in 88 countries expressed their level of agreement with the suggested components. In Phase 3, using results from Phase 2, the expert panel developed the definition. Results. The consensus-based definition is as follows: Palliative care is the active holistic care of individuals across all ages with serious health-related suffering due to severe illness and especially of those near the end of life. It aims to improve the quality of life of patients, their families and their caregivers. The definition includes a number of bullet points with additional details as well as recommendations for governments to reduce barriers to PC. Conclusion. Participants had significantly different perceptions and interpretations of PC. The greatest challenge faced by the core group was trying to find a middle ground between those who think that PC is the relief of all suffering and those who believe that PC describes the care of those with a very limited remaining life span.
| Item Type: | Article |
|---|---|
| Uncontrolled Keywords: | Definition of palliative care, consensus, delphi method, quality of life, relief of suffering, low or middle income countries |
| Subjects: | R Medicine > R Medicine (General) R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine R Medicine > RZ Other systems of medicine |
| Depositing User: | Fergie Pineda |
| Date Deposited: | 01 Nov 2023 15:54 |
| Last Modified: | 01 Nov 2023 15:54 |
| URI: | http://up-rid.up.ac.pa/id/eprint/6900 |
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